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Spina Bifida


SBH Queensland - Community organisation site with information on spina bifida, hydrocephalus, spina bifida occulta, education

Spina Bifida treatment, prevention and much more - A wide range of helpful Spina Bifida information concerning treatment, prevention, diagnosis, email groups, support groups, personal stories and much more. Updated regularly.

Living with Spina Bifida and Diabetes - Stories of two brothers living with Spina Bifida and Diabetes.

Spina Bifida - A chat room, information, pictures, stories, facts and diagrams, and resources for living with spina bifida.

Spina Bifida - One family journey with Spina Bifida.

Spina Bifida Association of America 

Camp Variety for Spina Bifida - A children's camp offering traditional camp activities such as swimming, as well as special features dealing with self-care and planning for the future.

Kimber's Spina Bifida Story - Kimber has Spina Bifida and would like to receive more info along with give some info.

Tracey White's Home on the Web - Spina Bifida - A personal homepage and chat.

Kimber's Spina Bifida Site - This site was formed to help people understand spina bifida.

Association for Spina Bifida and Hydrocephalus - Information about spina bifida, hydrocephalus and related topics. Home pages of the Association for Spina Bifida and Hydrocephalus.

Sarah Smile's World - A family site about raising a child with spina bifida. Includes information, links, and our personal story about our daughter Sarah, who was born with spina bifida.

Information On Spina Bifida 

Spina Bifida and Hydrocephalus Association of Nova Scotia 

Nicholas' Medical Miracle - A family's personal experience with in utero fetal surgery for spina bifida.

Words of Hope - Keith Piskur's letter to parents expecting a child with spina bifida and/or hydrocephalus, an encouraging message from someone born with these conditions.

Children with Spina Bifida: A Resource Page for Parents & Professionals

T.J.'s Page - T.J.'s story about living with a disability due to Spina Bifida and Hydrocephalus. It includes a photo album, informative links, and his in-depth story.

A World of Difference - This page contains resources, information, and personal story of a child with spina bifida.